The O.R.S.A. Research Grant Program offers grants for the support of projects with amounts of up to $100,000 (two grants of $50,000 or one grant of $100,000) per year for a period of one year. Funds cannot be used to cover tuition costs.
Through this process, O.R.S.A. invites grant applications from professionals committed to conducting novel, emerging, or innovative research in areas relevant to the cure, cause, prevention, improved treatment and/or understanding of Rett syndrome and its implications on those affected by this disorder. This program is provided to support current investigators and encourage new investigators to pursue research in Rett syndrome.
O.R.S.A. intends to provide awards to outstanding applicants who meet the eligibility criteria of the Program and who have been approved by its Research Grant Advisory Committee (the “Advisory Committee”). Further support is possible to existing funded projects by offering the option to renew funding upon the successful applicant’s re-application to the program.
Download Request for Applications
Letter of Intent Form
Should you have any inquiries, please contact:
Rick Goodhew
O.R.S.A. Advisory Committee
Ontario Rett Syndrome Association
goodhew@rogers.com
15th Annual Rett Classic
Last Updated: March 13, 2019 by Bryan Higgins
Sunday June 9th, 2019 – 1:00 PM
Registration: Beginning at 11:00 a.m. Sunday
Tee-Off: 1:00 p.m. Sunday
Dinner: Buffet Following Golf
Format: 4 Player Scramble
Location:
The Greens at Renton
969 Concession 14
Simcoe, ON N3Y 4K3
www.greensatrenton.com
Registration Form
Sponsorship Information
Deadline for registration is May 24th.
Cash donations and prizes/silent auctions items are greatly appreciated!
Thank you for your support!
Posted: January 29, 2019 by Bryan Higgins
Research Grant Program 2019-2020
The O.R.S.A. Research Grant Program offers grants for the support of projects with amounts of up to $100,000 (two grants of $50,000 or one grant of $100,000) per year for a period of one year. Funds cannot be used to cover tuition costs.
Through this process, O.R.S.A. invites grant applications from professionals committed to conducting novel, emerging, or innovative research in areas relevant to the cure, cause, prevention, improved treatment and/or understanding of Rett syndrome and its implications on those affected by this disorder. This program is provided to support current investigators and encourage new investigators to pursue research in Rett syndrome.
O.R.S.A. intends to provide awards to outstanding applicants who meet the eligibility criteria of the Program and who have been approved by its Research Grant Advisory Committee (the “Advisory Committee”). Further support is possible to existing funded projects by offering the option to renew funding upon the successful applicant’s re-application to the program.
Download Request for Applications
Letter of Intent Form
Should you have any inquiries, please contact:
Rick Goodhew
O.R.S.A. Advisory Committee
Ontario Rett Syndrome Association
goodhew@rogers.com
October is Rett Syndrome Awareness Month
Last Updated: January 29, 2019 by Bryan Higgins
October is Rett Syndrome Awareness Month internationally. This year the month has also been recognized by the Government of Canada and listed on their calendar of health promotion.
https://www.canada.ca/en/health-canada/services/calendar-health-promotion-days.html
The month gives us a chance to educate people in our communities about Rett Syndrome and how it impacts those affected and their caregivers. O.R.S.A. will be focusing on a different topic each week during the month:
As part of this, O.R.S.A. will officially launch a YouTube channel with interviews from speakers and participants at our 2018 conference. The videos will be rolled out throughout the month and we encourage everyone to share them with their family and friends.
Once again, major attractions in Ontario will be lit purple on October 29th.
We encourage everyone to light up their homes or business place purple as well! We have a flyer with basic information about Rett syndrome available to download and print for sharing with your neighbours.
Please send any photos to us on Facebook, Twitter or email bhiggins@rett.ca. Watch our social media accounts for lots of updates throughout the month.
Carrying a Dream
Last Updated: January 29, 2019 by Bryan Higgins
A father’s dream; a daughter’s destiny. Follow your dreams and overcome the challenges in your life.
Jason Dekorte, O.R.S.A. member and father of Scarlett recently travelled to Peru to fulfill a lifelong dream of visiting the Inca ruins while raising awareness for Rett Syndrome. He plans to produce a documentary about the trip.
Please check out the indiegogo page and watch the trailer!
https://www.indiegogo.com/projects/carrying-a-dream#/
Last Updated: August 15, 2018 by Bryan Higgins
AGM – Friday August 10, 2018
The Ontario Rett Syndrome Association’s
ANNUAL GENERAL MEETING
When: Friday August 10, 2018
Where: Holiday Inn and Suites
2565 Argentia Road, Mississauga ON L5N5V4
McKenzie Room 2nd Floor
PH: 905-542-2121
Time: 7:00 p.m. – 8:30 p.m.
Membership must have been obtained at least 45 days (by June 26th, 2018) prior to the meeting in order to be eligible to vote at the meeting. RSVP: Karen Congram – Kcongram@rett.ca
Directions & Map http://www.ihg.com/holidayinn/hotels/us/en/mississauga/msgon/hoteldetail/directions