How We Help

For Newly Diagnosed Families

• Provide new members that are parents/guardians with a complimentary package that includes the Silent Angel DVD and Rett Syndrome Handbook
• Assist with connecting to other local families and the Rett clinics

Ongoing Care and Education

• Fund and support Rett Syndrome Clinics at:
  • Children’s Hospital of Eastern Ontario
  • Thames Valley Children’s Centre
  • Holland Bloorview Kids Rehabilitation Hospital 

• Host conferences and symposiums
• Provide updates via our website, social media and email

Research

• Provide funding for Canadian research initiatives through the Hope Fund
• Developed and launched the Canadian Rett Syndrome Registry
• Completely fund the ongoing operational costs of the Canadian Rett Syndrome Registry

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