Who We Are

The Ontario Rett Syndrome Association (O.R.S.A.) exists to ensure that individuals with Rett Syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community. We are a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested agencies and individuals. The association funds and supports, Canadian research initiatives, Rett syndrome clinics in Ontario and the Canadian Rett Syndrome Registry. O.R.S.A. advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.