Who We Are
The Ontario Rett Syndrome Association (O.R.S.A.) exists to ensure that individuals with Rett Syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community. We are a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested agencies and individuals. The association funds and supports, Canadian research initiatives, Rett syndrome clinics in Ontario and the Canadian Rett Syndrome Registry. O.R.S.A. advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.
What is Rett Syndrome?
Rett syndrome (RTT) is a rare genetic neurological disorder that occurs almost exclusively in females; even rarer in males. It is estimated that 1 in 10,000 are affected by RTT, usually caused by a mutation of the MECP2… Read More
“What is Rett Syndrome?” Video
Fundraising Events
O.R.S.A. hosts signature fundraising events throughout the year at various locations in Ontario. Rett Classic Golf Tournament Flamborough Hills Golf Club in Copetown, ON – June 11, 2023 Registration Opens April 3, 2023 More Information Run4Rett Richvale… Read More
Our Advocacy Partners
