Stronger Together Caregiver Conference

Last Updated: 11/14/2023 by Steve

Date: October 20-22, 2023

Location: Ottawa, Ontario

AGENDA

Friday October 20
7:00pm – 9:00 pm Meet and Greet Registration to obtain name tags, conference package
Saturday October 21
7:00-8:00am Breakfast Registration to obtain name tags, conference package
8:00-8:30am O.R.S.A. Information session Sabrina Millson, O.R.S.A. President
8:30-9:15am Rett Syndrome Genetics Dr Victoria Siu, MD
9:15–10:00am Transition into Adulthood Caitlin Cassidy, MD
10:00 – 10:15am Break
10:15– 12:00pm Medical Panel Renee Brannan, RN & Neurology Case Manager Dr Cassidy & Dr Siu
12:00 – 1:00pm Lunch
1:00 – 2:00pm Communication and Literacy Karen Congram, Congram Education Consulting
2:00 – 3:15pm Communication and Literacy Karen Congram, Congram Education Consulting
3:15 – 3:30pm Break
3:30 – 4:30pm Beyond bubble baths: Self-care for the long haul Julie Keon, RSSW
6:00pm Celebration Dinner Business Casual Networking and Awards
Sunday October 22
8:00 – 8:45am Breakfast
8:45 – 10:30am Parent Panel Facilitated by Terry Boyd
10:30 – 10:45am Break
10:45 – 11:30am What is a clinical trial? Dr Elsa Rossignol, MD
11:30– 12:00pm Presentation Taysha Gene Therapies
12:00pm Wrap up and Lunch