P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877



Thames Valley Children’s Centre Rett Syndrome Clinic – London, Ontario

This specialty clinic has one or more physician specialists available. TVCC clinicians including physiotherapy (PT), occupational therapy (OT), speech-language pathology (SLP), social work (SW) and registered nurse (RN) clinician are often a part of these Specialty Clinics. The primary contact is Hannah Hojdak – Hanna.Hojdak@tvcc.on.ca


Complex Care RS Pathway Clinic – Holland Bloorview

This clinic provides comprehensive medical care and care coordination for individuals with Rett syndrome less than 18 years of age. The diagnosis must be made by a qualified physician based on accepted diagnostic criteria OR genetic testing confirming a mutation in the MeCP2 gene. A physician referral is required.

Toronto Western Hospital Provides Support  – Toronto, Ontario


Updated as of March 1, 2023

Rett syndrome care at CHEO [Read More]

CHEO provides consultative genetics care to children and adults in its region who have Rett syndrome and related disorders. Their pediatric neurologists see patients up to their 18th birthday. Referrals from your primary provider will be needed. 

This includes patients with:

  • Classical or atypical Rett syndrome, with or without a MECP2 mutation
  • CDKL5 deficiency disordera
  • FOXG1 deficiency disorder

CHEO provides best-practice Rett syndrome expertise regarding:

  • Neurological problems (seizures, dystonia, spasticity, apraxia, contractures)
  • Autonomic dysfunction (breathing and cardiac dysrhythmia, constipation, vasomotor symptoms)
  • Sleep and behavior issues
  • Bone health and scoliosis
  • Genetics and family planning

A CHEO neurology nurse coordinates care related to Rett syndrome and can be reached at 613-737-7600, ext. 2159, Monday to Friday from 7 a.m. to 3 p.m.