P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

2020 Awareness Month

While October is over and both Rett Syndrome Awareness Month and our first virtual Run4Rett has concluded, we are not stopping our efforts. While this year has been challenging for all of us, we would like to thank everyone who participated in the run from across country. It was so amazing to see everyone helping us spread awareness across the globe! 

This year we have increased the number of communities involved with both lighting Canada purple on October 29th, with the help of our sister organizations across Canada. We thank everyone involved to help grow this event each year. Here is a list of Ontario locations.

We have also been working hard to increase the number of communities to proclaim October as Rett Syndrome Awareness Month. This year we had increased the number of proclamations in Ontario to 26.

Still Accepting Donations

The Running Room fundraising page has now closed, but we are still accepting donations through our website.

All proceeds fund crucial activities organized by O.R.S.A.’s volunteer board of directors. These include:

  • Funding of 3 Rett syndrome clinics in Ontario
  • The Hope Fund which provides grants to Canadian researchers
  • Bi-annual family conference and medical symposium
  • The Canadian Rett Syndrome Registry

A Few Photos From Our Virtual Run4Rett

Canada was LIT UP!

October is Rett Syndrome Awareness Month. This year we are joining with our sister organizations to the west to light up attractions and buildings across the country.

Send us your photos and make sure to use hashtag #LightCanadaPurple

2020 Ontario Purple Themed Lighting Locations


2020 Canada Purple Themed Lighting Locations

Online Auction – Closes November 12 @ 5pm (EST)

Some of you may or may not be aware that the annual Run4Rett typically hosted a Silent Auction the day of the race. This year due to COVID-19 O.R.S.A. decided to host the 16th Annual Run4Rett virtually. Just like the run, hosting the annual silent auction had to be reinvented.

The auction will close on Thursday, November 12th at 5:00 p.m.

Click button below to take a look at the 16th Annual Run4Rett Silent Auction.

Let the bidding begin!

Photos Wanted – Virtual Run4Rett 2020

Due to the pandemic, we were unable to gather together in Richmond Hill for our annual Run4Rett. We miss seeing everyone’s faces and catching up with what is new in everyone’s life. Since, we couldn’t meet in person that doesn’t mean we don’t want to see everyone.

Please send us your virtual Run4Rett photos, so we can share with everyone.

You can also share them on social media using the hashtag #Run4Rett or tag us with the following handles:

  • Facebook – @OntarioRettSyndromeAssociation 
  • Instagram – @ontrettsyndromeassociation
  • Twitter – @OntarioRettSA

You can also email them to smiguel@rett.ca