P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

Research Grant Application Program 2022-2023

The Program offers grants for the support of projects with amounts of up to $100,000 (two grants of $50,000 or one grant of $100,000) plus up to 10% indirect costs per year for a period of one year. Funds cannot be used to cover tuition costs.

Through this process, O.R.S.A. invites grant applications from professionals committed to conducting novel, emerging, or innovative research in areas relevant to the cure, cause, prevention, improved treatment and/or understanding of Rett syndrome and its implications on society. This program is provided to support current investigators and encourage new investigators to pursue research in Rett syndrome.

O.R.S.A. intends to provide awards to outstanding applicants who meet the eligibility criteria of the Program and who have been approved by its Research Grant Advisory Committee (the “Advisory Committee”). Further support is possible to existing funded projects by offering the option to renew funding upon the successful applicant’s re-application to the program.

Request for Applications for the Research Grant Program

Letter of Intent Form

Should you have any inquiries, please contact:

Rick Goodhew

O.R.S.A. Advisory Committee

Ontario Rett Syndrome Association

goodhew@rogers.com

Uncorked Rett is Back

TREAT YOURSELF … AND SOMEONE ELSE TOO

For our second year in a row – Ontario Rett Syndrome Association has teamed up with Fielding Estate Winery with a hand selected packages great for the holidays. When you purchase any of the wine packages available, 25% will be donated back to Ontario Rett Syndrome Association. Delivery will be included throughout Ontario, but for other Provinces and Territories, accommodations can be made through Fielding Estate Winery.

Available Packages


Free Shipping within Ontario.
Shipping available outside of Ontario. 
  • 2018 White Conception
  • 2020 Estate Bottle Pinot Gris
  • 2019 Estate Bottled Riesling
  • 2019 Red Conception
  • 2019 Rock Pile Red


Free Shipping within Ontario.
Shipping available outside of Ontario. 
  • 2018 White Conception
  • 2020 Estate Bottle Pinot Gris
  • 2019 Estate Bottled Riesling
  • 2019 Red Conception
  • 2019 Rock Pile Red
  • 2019 Gewurztraminer
  • 2019 Cabernet- Syrah
  • 4 Pack of Fielding Original Craft Hard Cider

When you click on the package you will be redirected to Fielding Estate Winery website to purchase your package. If you wish to order other items they carry or for all orders outside of Ontario the wine lodge is happy to assist you. Please call 1.888.778.7758 and reference our Rett fundraiser. Thank you for support.

Thank You Kevin

As Rett syndrome Awareness Month draws to a close, let’s take the opportunity to say ‘thank you’ to Kevin Morton, past president.  Thank you for the countless hours of volunteer time to coordinate, facilitate and keep O.R.S.A. true to its mission statement.  Your dedication and forward direction over the years has been greatly appreciated by the O.R.S.A. board, families and friends but most of all those living with Rett Syndrome. 

Thank you Kevin for making a difference.

ANAVEX2-73 Study Now Recruiting in Canada

Anavex Life Sciences Corp is recruiting patients for their study of ANAVEX2-73 in Rett syndrome patients in British Columbia Children’s Hospital in Vancouver and Alberta Children’s Hospital in Calgary. The study is the first ever clinical trial for Rett syndrome in the Canada.

This is a 12-week study of ANAVEX2-73, a liquid medication administered by mouth, for the treatment of patients with Rett syndrome between 5-17 years of age. The study is randomized, meaning 2 out of 3 participants will receive the study drug and 1 out of 3 will receive placebo. The placebo is an inactive liquid solution that looks and tastes just like the study medication but has no effects. The study involves 4 in-person visits at the clinical site, and 4 phone calls. Participants that complete the trial will be offered the option to enrol in a 48-week Open Label Extension, where all participants will receive the active study drug (not placebo). Study visits will include collection of blood and urine, ECGs (measures electrical activity of the heart), physical examinations and questionnaires completed by the patient’s caregiver. Travel expenses related to visits, such as flights, mileage and food, will be reimbursed by the study.

If you are interested in participating and would like to be added to the contact list please email, Sabrina Millson at smillson@rett.ca.

Include the following details in your email:

  • Name
  • Province
  • Contact number
  • Love one’s name and date of birth
  • Vaccination status:
  • 1st vaccine date and type
  • 2nd vaccine date and type

For more information on the study, including full inclusion and exclusion criteria, please visit ClinicalTrials.gov:

https://clinicaltrials.gov/ct2/show/NCT04304482

Taysha Community Updates – September 2021

Taysha Gene Therapies has shared the following updates from an educational event held this month with investors. Progress is continuing on TSHA-102, the investigational gene therapy for Rett syndrome. They plan to enroll patients 18 years or older for the first clinical trial.

September 22, 2021 Update

September 24, 2021 Update