P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

Still Accepting Donations

The Running Room fundraising page has now closed, but we are still accepting donations through our website.

All proceeds fund crucial activities organized by O.R.S.A.’s volunteer board of directors. These include:

  • Funding of 3 Rett syndrome clinics in Ontario
  • The Hope Fund which provides grants to Canadian researchers
  • Bi-annual family conference and medical symposium
  • The Canadian Rett Syndrome Registry

A Few Photos From Our Virtual Run4Rett

Canada was LIT UP!

October is Rett Syndrome Awareness Month. This year we are joining with our sister organizations to the west to light up attractions and buildings across the country.

Send us your photos and make sure to use hashtag #LightCanadaPurple

2020 Ontario Purple Themed Lighting Locations


2020 Canada Purple Themed Lighting Locations

Online Auction – Closes November 12 @ 5pm (EST)

Some of you may or may not be aware that the annual Run4Rett typically hosted a Silent Auction the day of the race. This year due to COVID-19 O.R.S.A. decided to host the 16th Annual Run4Rett virtually. Just like the run, hosting the annual silent auction had to be reinvented.

The auction will close on Thursday, November 12th at 5:00 p.m.

Click button below to take a look at the 16th Annual Run4Rett Silent Auction.

Let the bidding begin!

Photos Wanted – Virtual Run4Rett 2020

Due to the pandemic, we were unable to gather together in Richmond Hill for our annual Run4Rett. We miss seeing everyone’s faces and catching up with what is new in everyone’s life. Since, we couldn’t meet in person that doesn’t mean we don’t want to see everyone.

Please send us your virtual Run4Rett photos, so we can share with everyone.

You can also share them on social media using the hashtag #Run4Rett or tag us with the following handles:

  • Facebook – @OntarioRettSyndromeAssociation 
  • Instagram – @ontrettsyndromeassociation
  • Twitter – @OntarioRettSA

You can also email them to smiguel@rett.ca

Run4Rett – Virtual – October 2020

You’re invited to the Virtual 2020 RUN4RETT, taking place from October 1st to October 31st, 2020.

October is Rett Awareness month, what better way to raise awareness!

Run by yourself or with friends and family – you can run whenever, wherever – run on a treadmill, around your neighbourhood or any course of your choosing. This is an opportunity to unite via social media with other families and friends supporting the same cause. This year however we unite in our own backyard instead of Richmond Hill. You will have your own finish line, but you won’t be alone! You will be connected together with the unbreakable spirit of all our loved ones with Rett syndrome.

You can set up a fundraising page through your Running Room account, after you have registered for the Run.

The 16th annual 1k and 5k walk / run is a signature fundraiser for the Ontario Rett Syndrome Association (O.R.S.A.).

All proceeds fund crucial activities organized by O.R.S.A.’s volunteer board of directors. These include:

  • Funding of 3 Rett syndrome clinics in Ontario
  • The Hope Fund which provides grants to Canadian researchers
  • Bi-annual family conference and medical symposium
  • The Canadian Rett Syndrome Registry

Please JOIN US! Walk or run for the 1K or 5K with your social circle! Share your pictures with us to be featured on social media.

Register Online – Closes October 29th