Last Updated: 11/01/2022 by admin
You’re invited to the virtual Run4Rett, taking place from October 1st to October 31st, 2022.

October is Rett Awareness month, what better way to raise awareness!
Run by yourself or with friends and family – you can run whenever, wherever – run on a treadmill, around your neighbourhood or any course of your choosing. This is an opportunity to unite via social media with other families and friends supporting the same cause. Again this year we unite in our own backyard instead of Richmond Hill. You will have your own finish line, but you won’t be alone! You will be connected together with the unbreakable spirit of all our loved ones with Rett syndrome.
You can set up a fundraising page through your Running Room account, after you have registered for the Run.
The 18th annual 1k and 5k walk / run is a signature fundraiser for the Ontario Rett Syndrome Association (O.R.S.A.).
All proceeds fund crucial activities organized by O.R.S.A.’s volunteer board of directors. These include:
- Funding of 3 Rett syndrome clinics in Ontario
- The Hope Fund which provides grants to Canadian researchers
- Bi-annual family conference and medical symposium
- The Canadian Rett Syndrome Registry
Please JOIN US! Walk or run for the 1K or 5K with your social circle! Share your pictures with us to be featured on social media.
Register Online with the Running Room – Registration Closes October 31st
Download Pledge Sheet
2022 Uncorked Rett
Last Updated: 01/16/2023 by Steve
Taysha Community Update
Last Updated: 10/31/2022 by admin
Light Canada Purple Submissions
Last Updated: 11/15/2022 by Steve
We would love to see your photos of iconic locations or local supporters that were lit purple for Rett Syndrome.
Run4Rett Submissions
Last Updated: 11/15/2022 by Steve
RUN4RETT Silent Auction
Last Updated: 11/01/2022 by admin
The 2022 Silent Auction is now closed. Thank you to all that participated and supported the Ontario Rett Syndrome Association this year. O.R.S.A. met 43.5% of the goal, raising $2,175.00. Payments are coming in and the items are being packaged and will be shipped in the next 3 – 5 days. Of course there are some participants that opted to pick up their items. Those have been packaged and many have already been picked up.
10
Thank you for supporting O.R.S.A., together we are building healthy tomorrows.
Light Canada Purple Video
Last Updated: 11/01/2022 by Steve
We are excited to share our new video and hope you share it with family and friends.
New Awareness Resources
Last Updated: 11/01/2022 by Steve
18th Annual Run4Rett Silent Auction is On-Line!
Last Updated: 10/18/2022 by admin
Bidding Opens: Saturday, October 1st at 9:00 a.m.
Bidding Closes: Sunday, October 16th at 9 p.m.
The Auction is being held on-line and the 2022 Run is virtual. There are over 100 items to bid on. Take a look prior to going live and share the link with friends, family and co-workers.
More children’s items to select from this year! Such as; Disney Princess Prime 3D Puzzle, Harry Potter Prime 3D Puzzle, Fortnite Battle Royale Collections and Indoor Safe Flying Discs to name a few. As always, for the serious collector, some autographed Blue Jays Photo’s and Jerseys. Be sure to view the multi Signed Toronto Blue Jays 16 x 20 Photo. Signed by White/Alomar/Molito/Carter/Olerud). Books, golf shoes, shirts, shorts, the list goes on.
Click here to take a look at the 18th annual Run4Rett Silent Auction.
Thank you for supporting Rett syndrome.
2022 AGM Presentation with Dr. Walter Kaufmann from Anavex Life Sciences
Last Updated: 11/01/2022 by admin
Ontario Rett Syndrome Association was pleased to have Guest Speaker – Dr. Walter Kaufmann from Anavex Life Sciences to discuss ANAVEX2-73 clinical trial in Pediatric Patients With Rett Syndrome (EXCELLENCE) at the beginning of their 2022 Annual General Meeting.
Run4Rett – Virtual – October 2022
Last Updated: 11/01/2022 by admin
You’re invited to the virtual Run4Rett, taking place from October 1st to October 31st, 2022.
October is Rett Awareness month, what better way to raise awareness!
Run by yourself or with friends and family – you can run whenever, wherever – run on a treadmill, around your neighbourhood or any course of your choosing. This is an opportunity to unite via social media with other families and friends supporting the same cause. Again this year we unite in our own backyard instead of Richmond Hill. You will have your own finish line, but you won’t be alone! You will be connected together with the unbreakable spirit of all our loved ones with Rett syndrome.
You can set up a fundraising page through your Running Room account, after you have registered for the Run.
The 18th annual 1k and 5k walk / run is a signature fundraiser for the Ontario Rett Syndrome Association (O.R.S.A.).
All proceeds fund crucial activities organized by O.R.S.A.’s volunteer board of directors. These include:
Please JOIN US! Walk or run for the 1K or 5K with your social circle! Share your pictures with us to be featured on social media.
Register Online with the Running Room – Registration Closes October 31st
Download Pledge Sheet