P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

Research Grant Application Program 2021-2022

The Program offers grants for the support of projects with amounts of up to $50,000 (two grants of $25,000 or one grant of $50,000) per year for a period of one year. Funds cannot be used to cover tuition costs.

Through this process, ORSA invites grant applications from professionals committed to conducting novel, emerging, or innovative research in areas relevant to the cure, cause, prevention, improved treatment and/or understanding of Rett syndrome and its implications on society. This program is provided to support current investigators and encourage new investigators to pursue research in Rett syndrome.

ORSA intends to provide awards to outstanding applicants who meet the eligibility criteria of the Program and who have been approved by its Research Grant Advisory Committee (the “Advisory Committee”). Further support is possible to existing funded projects by offering the option to renew funding upon the successful applicant’s re-application to the program.

Request for Applications for the Research Grant Program

Letter of Intent Form

Should you have any inquiries, please contact:

Rick Goodhew

O.R.S.A. Advisory Committee

Ontario Rett Syndrome Association


ARCH Study Update

While GW Pharmaceuticals did not have any active sites or Canadian patients, the Ontario Rett Syndrome Assocation (O.R.S.A.) was actively supporting them to establish a Canadian location.  While this news is disappointing, it is understandable given the current COIVD-19 implications across the world.  O.R.S.A. remains committed to bringing Rett syndrome Clinical Trials to Canada to ensure that individuals with Rett syndrome are enabled to achieve their fullest potential and enjoy the highest quality of life within their community.

Online Auction – Now Closed

Thank you to all that have participated in our very first Online Silent Auction for the Run4Rett. This year due to COVID-19 O.R.S.A. decided to host the 16th Annual Run4Rett virtually.

The auction is now closed!

Thank you to all our Supporters!

Click button below to take a look at the 16th Annual Run4Rett Silent Auction.

Uncorked Rett is Here


We have teamed up with Fielding Estate Winery, in Beamsville, Ontario to offer you some great wine packages as the holiday approaches. When you purchase any of the wine packages available, 25% will be donated back to Ontario Rett Syndrome Association. Delivery will be included throughout Ontario, but for other Provinces and Territories, accommodations can be made through Fielding Estate Winery.

With your help and generous support, we will be able to continue to provide conferences, fund Canadian research projects, financial support three Rett Syndrome Clinics, and the Canadian Rett Syndrome Registry. 

Available Packages

Free Shipping within Ontario.
Shipping available outside of Ontario. 
  • 2017 Fireside white
  • 2019 Pinot Grigio
  • 2019 Rose
  • 2018 Fireside Red
  • 2018 Red Conception
Free Shipping within Ontario.
Shipping available outside of Ontario. 
  • 2019 Rose
  • 2019 Estate Bottled Riesling
  • 2019 Pinot Grigio
  • 2019 Chardonnay Unoaked
  • 2019 Gamay
  • 2018 Rock Pile Red
  • 2018 Cabernet Franc
  • 2017 Cabernet-Syrah

When you click on the package you will be redirected to Fielding Estate Winery website to purchase your package. If you wish to order other items they carry or for all orders outside of Ontario the wine lodge is happy to assist you. Please call 1.888.778.7758 and reference our Rett fundraiser. Thank you for support.

2020 Awareness Month

While October is over and both Rett Syndrome Awareness Month and our first virtual Run4Rett has concluded, we are not stopping our efforts. While this year has been challenging for all of us, we would like to thank everyone who participated in the run from across country. It was so amazing to see everyone helping us spread awareness across the globe! 

This year we have increased the number of communities involved with both lighting Canada purple on October 29th, with the help of our sister organizations across Canada. We thank everyone involved to help grow this event each year. Here is a list of Ontario locations.

We have also been working hard to increase the number of communities to proclaim October as Rett Syndrome Awareness Month. This year we had increased the number of proclamations in Ontario to 26.