P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877


Dear National Registry Users,

We are thrilled to announce that the Canadian Rett Syndrome National Registry recently underwent a temporary offline period for a significant upgrade aimed at securing your data and providing enhanced customization options to better serve your needs. This upgrade comes just in time for our 10-year anniversary, marking a decade of commitment to excellence.

Key Enhancements:

  1. Security Upgrade: Your data security is our top priority. The recent upgrade includes robust measures to ensure the utmost protection of your information.
    Customization Options: We now offer tailored options to provide you with a more personalized and efficient experience within the National Registry.
    10-Year Anniversary Celebration: As we celebrate a decade of service, we want to express our gratitude for your continued trust and support in O.R.S.A.

New Options Available:

  • Comprehensive Registry: Explore the upgraded and comprehensive registry that allows you to provide your loved one's information to strengthen knowledge about Rett Syndrome in Canada. 
    Clinical Trials and Drug Access Registry: Tailor your experience in providing your contact information for upcoming opportunities withing Canada for Rett Syndrome.

We appreciate your patience during the temporary downtime and hope you enjoy the enhanced features.

Thank you for being a valued part of the Canadian Rett Syndrome National Registry community.