We would like to thank Linda Burwell for organizing the Ring for Rett Handbell Concert that is being held on December 14^th at 6:00 pm at the Carriage House Theatre (http://www.thecarriagehousetheatre.com/index.html) in Cardston, Alberta.  All the proceeds from the concert will go to the Ontario Rett Syndrome Association (O.R.S.A.).  If you would like more information about the concert, please contact O.R.S.A. (bhall@rett.ca) and we will forward your questions.

Giving Tuesday is coming up on Tuesday, November 29th, 2016.

On giving Tuesday all donations to O.R.S.A. will be directed to The Hope Fund.  This fund exists solely for research and 100% of all these dollars will go to Rett syndrome research to find a cure and/or treatment for Rett syndrome.

Please share this link with friends who may be willing to make a donation to research:

http://givingtuesday.ca/partners/Ontario-rett-syndrome-association#.VIYOP3arTrd

Rise Against Rett Syndrome

Thank you to the Hollman family for supporting all those living with this rare disorder and making a difference by ‘Building Healthy Tomorrows’.  Fundraising does not need to be complicated, if your event educates one person about Rett syndrome then it should be considered a success!  If you are interested in creating or supporting a fundraising event, please do not hesitate to contact fundraising@rett.ca for more information.

      

Niagara Falls, Canada ~ The Colour Purple for Rett Syndrome Awareness Month on October 3rd.

October 25, 2015: The CN Tower will light up purple!

Pass it on…….

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It’s the 1st of October and Rett syndrome awareness month is officially underway. Annually, October is the month we give a big push to educate the public about Rett syndrome, to raise awareness and to share stories. This year our focus is WHY. Why would you give? We’ll be sharing stories throughout the month, stories from people like you telling us why they give.

The Ontario Rett Syndrome Association is joining forces with others around the world to tell the world about why we are all giving to find a cure and change the world for girls and women who live with Rett syndrome.

We share a common goal: finding treatments – and ultimately a cure – as soon as humanly possible, by speeding up the research that will unlock the girls. We’re asking everyone who gives to this life-changing cause – every family member, friend, sponsor, donor – to tell us what motivates you to give, whether it’s running a marathon, writing a cheque, organizing an event or taking part in a clinical trial.

This is what we’re asking YOU to do – post on social media using the hashtag ‪#‎WWYG‬, tell the world WHY you give. Let’s make this October one where people are inspired to learn more, give more and develop a lasting connection to our important cause.

You can freely share any of the images or links you see us using through the month. Want the cover photo or shareable graphic? Use them with our gratitude!! Please visit the website www.wwyg.org to see stories from dozens of people around the world. Want to see your story on the website? Send it to us along with a picture and we’ll add it for you.

When people work together the burden is shared and amazing things can happen. Here’s to a month full of awesome unity!

Please take the time to read the following two stories, thank you:

Terry- http://www.wwyg.org/portfolio/terry/

Darcy-http://www.wwyg.org/portfolio/darcy/

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Together We Are “Building Healthy Tomorrows”!