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Parent Survey

Karen Congram is a graduate student in the Faculty of Education at Wilfrid Laurier University. She is conducting a study to examine the barriers to full participation and learning for students with complex communication needs in Ontario public schools from… Read More

Acadia acquires global rights to Trofinetide

Acadia Pharmaceuticals Acquires Ex-North American Rights to Trofinetide and Global Rights to Neuren’s NNZ-2591 in Rett Syndrome and Fragile X Syndrome – Expanded agreement follows Acadia’s April 2023 U.S. launch of DAYBUE™ (trofinetide) as the first and only… Read More

2023 Hope Fund Grant Winners

The Ontario Rett Syndrome Association (O.R.S.A.) Board of Directors has unanimously approved the funding of two research grant totaling $150,000 from The Hope Fund for 2023. The Hope Fund has funded over $828,000 in Canadian research to date…. Read More