The Ontario Rett Syndrome Association dedicates a financial contribution towards the necessary funding needed to maintain the Rett Syndrome Clinics in Ontario. Without this yearly contribution from O.R.S.A. these clinic would not be able to continue to exist.
This specialty clinic has one or more physician specialists available. TVCC clinicians including physiotherapy (PT), occupational therapy (OT), speech-language pathology (SLP), social work (SW) and registered nurse (RN) clinician are often a part of these Specialty Clinics. The primary contact is Hannah Hojdak – Hanna.Hojdak@tvcc.on.ca
Physician referral is required. This can be done by sending a fax to 613-738-4879. Please ensure the following information is included in the referral:
Patient’s full name, date of birth, address and telephone number
A copy of all previous genetic testing results
A copy of all available growth curves (height, weight and head circumference) from birth
Any non-CHEO physician or psychologist consultation letters
A full list of current and past medications
We are located in Level 1 (basement) in the Garry Cardiff Wing of CHEO.
Patients from other provinces may been seen here. Appointments may be done by video conference due to COVID-19.
This clinic provides comprehensive medical care and care coordination for individuals with Rett syndrome less than 18 years of age. The diagnosis must be made by a qualified physician based on accepted diagnostic criteria OR genetic testing confirming a mutation in the MeCP2 gene. A physician referral is required.
Clinics
The Ontario Rett Syndrome Association dedicates a financial contribution towards the necessary funding needed to maintain the Rett Syndrome Clinics in Ontario. Without this yearly contribution from O.R.S.A. these clinic would not be able to continue to exist.
London
Thames Valley Children’s Centre Rett Syndrome Clinic – London, Ontario
This specialty clinic has one or more physician specialists available. TVCC clinicians including physiotherapy (PT), occupational therapy (OT), speech-language pathology (SLP), social work (SW) and registered nurse (RN) clinician are often a part of these Specialty Clinics. The primary contact is Hannah Hojdak – Hanna.Hojdak@tvcc.on.ca
Ottawa
Children’s Hospital of Eastern Ontario (CHEO) Rett Syndrome Clinic – Ottawa, Ontario
613-737-7600 ext.3227
Physician referral is required. This can be done by sending a fax to 613-738-4879. Please ensure the following information is included in the referral:
We are located in Level 1 (basement) in the Garry Cardiff Wing of CHEO.
Patients from other provinces may been seen here. Appointments may be done by video conference due to COVID-19.
Toronto
Complex Care RS Pathway Clinic – Holland Bloorview
This clinic provides comprehensive medical care and care coordination for individuals with Rett syndrome less than 18 years of age. The diagnosis must be made by a qualified physician based on accepted diagnostic criteria OR genetic testing confirming a mutation in the MeCP2 gene. A physician referral is required.
Toronto Western Hospital Provides Support – Toronto, Ontario