Many thank to the International Rett Syndrome Foundation @rettsyndrome.org for hosting the 2024 ASCEND family conference. It was wonderful and heartwarming to re-connect with families, friends, health care professionals and Industry. We are excited to announce our continued… Read More
O.R.S.A. Advocating for Canadian Families since 1991
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Posted: 06/21/2024 by Steve
Many thank to the International Rett Syndrome Foundation @rettsyndrome.org for hosting the 2024 ASCEND family conference. It was wonderful and heartwarming to re-connect with families, friends, health care professionals and Industry. We are excited to announce our continued… Read More
2024 Research Grant Awarded
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Last Updated: 05/03/2024 by Steve
The Board of Directors has unanimously approved the funding of two research grants totaling $100,000 from the Hope Fund for 2024. Both projects have strong scientific merit and show promise into future Rett research. The Hope Fund was… Read More
Health Canada Accepts a New Drug Submission
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Last Updated: 04/24/2024 by Steve
Health Canada Accepts New Drug Submission for Trofinetide Acadia Pharmaceuticals is pleased to share that Health Canada has accepted their New Drug Submission (NDS) of trofinetide for the treatment of Rett Syndrome. Moreover, the treatment has been granted Priority Review to… Read More