Health Canada Approves Daybue! Acadia Pharmaceuticals Announces Health Canada Approval of DAYBUE (trofinetide) for the Treatment of Rett Syndrome. DAYBUE is the first and only therapy approved in Canada for the treatment of Rett syndrome, a rare neurodevelopmental disorder…. Read More
Annual General Meeting Highlights from Committee Reports August 2023-Sept 2024 Communications New and improved website to be released to ORSA community members in the near future – currently finalizing Improved use of social media and e-blasts to… Read More
Order your Copy Today! We are beyond excited to share the 2025 ORSA Calendar, where art, resilience, and community come together form coast to coast in the most beautiful way! Created by individuals with Rett syndrome and their amazing… Read More
DAYBUE – Breaking News
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Last Updated: 01/21/2025 by Steve
Health Canada Approves Daybue! Acadia Pharmaceuticals Announces Health Canada Approval of DAYBUE (trofinetide) for the Treatment of Rett Syndrome. DAYBUE is the first and only therapy approved in Canada for the treatment of Rett syndrome, a rare neurodevelopmental disorder…. Read More
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Last Updated: 01/23/2025 by Steve
2023-24 AGM Committee Reports
Annual General Meeting Highlights from Committee Reports August 2023-Sept 2024 Communications New and improved website to be released to ORSA community members in the near future – currently finalizing Improved use of social media and e-blasts to… Read More
2025 Calendars
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Last Updated: 11/20/2024 by Steve
Order your Copy Today! We are beyond excited to share the 2025 ORSA Calendar, where art, resilience, and community come together form coast to coast in the most beautiful way! Created by individuals with Rett syndrome and their amazing… Read More