Who We Are
The Ontario Rett Syndrome Association (O.R.S.A.) exists to ensure that individuals with Rett Syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community. We are a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested agencies and individuals. The association funds Canadian research projects, three Rett syndrome clinics and developed the Canadian Rett Syndrome Registry. O.R.S.A. advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.
What is Rett Syndrome?
Rett syndrome (RTT) is a neurodevelopmental condition characterized by the loss of spoken language and hand use, coupled with the development of distinctive hand stereotypies. This disorder is seen in infancy and occurs almost exclusively in females. It… Read More
“What is Rett Syndrome?” Video
Fundraising Events
O.R.S.A. hosts signature fundraising events throughout the year at various locations in Ontario. Due to COVID-19, we have moved to virtual fundraising in 2020/2021 but we hope to see everyone out at the events in the near future…. Read More
Our Advocacy Partners
