P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

2014 Conference ~ We “R” Family

The Ontario Rett Syndrome Association is very pleased to announce that the 2014 conference planning is well under way! The conference committee has carefully designed an agenda that will provide presentations on cutting edge research, medical management for the comorbidities in Rett syndrome, communication and literacy learning strategies, complex care plan development and so much more. We are pleased to welcome international speakers Dr. Jeff Neul from The Blue Bird Circle Rett Clinic in Texas and Judy Lariviere from the Katie’s Clinic for Rett Syndrome at Children’s Hospital & Research Center Oakland in California. Tessa Gresley-Jones, Dr. Patrick MacLeod, Dr. Peter Humphreys, Dr. James Eubanks, Dr. Kevin Bax, Dr. Victoria Siu & Dr. Melissa Carter are just a few of our Canadian presenters.


Private 30 minutes clinical meetings with a RTT Expert will be once again offered. A new addition available will be private communication support meetings with a communication expert that has expertise knowledge of iPads, Tobii CEye, Dynavox, etc.


The 2014 conference will provide opportunities of fun for the entire family. Plans include a scavenger hunt and a craft table to create your own nametag at Friday’s welcome reception. Saturday evening will be a time to celebrate “R” families together. Activities to be included are candy stations, music, raffles and so much more. Lots of fun for the whole family!


Please save April 25-27th, 2014 to attend the We “R” Family Conference at the Courtyard Marriott in Hamilton, Ontario.


We are excited to announce that the Ontario Rett Syndrome Association (O.R.S.A.) has been awarded a CIHR Meetings and Knowledge Dissemination grant of $25,000! This funding will allow O.R.S.A. to host the Canadian Rett Syndrome Symposium in April, 2014 in Hamilton, Ontario. This exciting event will take place simultaneously with O.R.S.A.’s “We R Family” Conference. Click Knowledge Dissemination Grant to read the full article.