Hosts of the 2014 Symposium


The Ontario Rett Syndrome Association is proud to organize and host the 2014 Canadian Rett Syndrome Symposium. This will be the first time Canadian scientists, clinicians and representatives from the provincial Rett syndrome groups will be brought together! This exciting event is funded by O.R.S.A. and a grant from the Canadian Institute of Health Research. […]

Conference Co-Chairs Message


This is the most exciting and promising time within the Rett syndrome community since the MECP2 discovery in 1999. There is a greater understanding of this complex disorder. Increased research is being conducted in Canada and around the world to find a treatment and a cure. Drug trials have commenced and will be possible in […]

Canadian Rett Syndrome Registry


The Board of Directors of the Ontario Rett Syndrome Association is extremely proud to announce that the Canadian Rett Syndrome Registry (CRSR) will launch in the spring of 2014.  The establishment of the registry will have a huge impact on all Canadians living with Rett syndrome. It is encouraged that all children and adults with […]

RS Medical Symposium

The Ontario Rett Syndrome Association is proud to partner with McMaster University and McMaster Children’s Hospital to host a Rett syndrome medical symposium on Friday, April 25th, 2014. O.R.S.A. is dedicated to providing continued medical education on Rett syndrome. To date O.R.S.A. has co-hosted five medical symposiums.

All families are encouraged to share the Rett Syndrome Symposium Poster with health professionals, educators and case managers involved in the care of their loved ones with Rett syndrome. The symposium presentations will provide up-to-date information on Rett syndrome, genetics, research, treatment advances, the national registry and the medical supports available. Families can also participate by the use of web-casting. Please share this important Rett syndrome medical education opportunity. The deadline for sign-up for video conferencing and web-casting is Friday, April 19th, 2014. Contact Darcy Balak at for further information or to sign-up.

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What's Going On

  • Save The Date

    April 2014 - Canadian Rett Syndrome Registry Launch. April 25 ~ 27th, We ‘R’ Family Conference, Hamilton, Ontario. June 21st  – Golf Tournament,  London, Ontario. July 26th – Neuro-Palooza, Paris, Ontario. August 16th – Ride 4 Rett, Kingston, Ontario. September 21st – Run 4 Rett ~ 10th Anniversary, Richmond Hill, Ontario. October Rett Awareness Month.    

  • Ref 4 Rett

    ‘REF4RETT’ ~ Saturday, February 1st

    2nd Annual Ref4Rett was held February 1st.  Updates will be coming to the site, please visit again.

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