The Hope Fund


O.R.S.A. is proud to announce the creation of The Hope Fund. This fund exists solely for research. 100% of all these dollars will go to Rett syndrome research to find a cure and/or treatment for Rett syndrome. The Hope Fund will be releasing a $50,000 research grant this year. We are very thankful to REF […]

Dr. Bengt Hagberg ~ Champion to Those Living with RS

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It is with a heavy heart, we share that Dr. Bengt Hagberg has passed away. Dr. Hagberg was a great friend to the Ontario Rett Syndrome Association and the Rett syndrome community. Dr. Hagberg played an instrumental role in educating the medical community about a mysterious female disease and the naming of Rett syndrome. Dr. […]

Canadian Rett Syndrome Registry


The Canadian Rett Syndrome Registry has been launched. All living Canadian residents diagnosed with RTT may enrol. The registry is available in French and English.

Rett Syndrome Awareness Videos


What's Going On

  • 2015 Research Grant Awarded

    London, Ontario – March 27, 2015 - The Ontario Rett Syndrome Association (O.R.S.A.) Board of Directors has unanimously approved the funding of a $50,000 Research Grant to a joint grant application from Dr. Juan Ausio (Biochemistry and Microbiology, University of Victoria, BC) and Dr. John Vincent (Neurogenetics, University of Toronto). Their application was one of [...]
  • Canadian Connections

    RETT SYNDROME SOCIETY OF BC We at the Rett Syndrome Society of BC (RSSBC) would like to thank you for allowing us to attend not only your “We ‘R’ family” conference but also the Friday evening research meeting. RSSBC was able to make connections with local researchers, physicians and even a couple of families. However […]

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    Events 2015

    Silent Angel Golf Day – Sunday June 14th, 2015, Stratford, Ontario Neuropalooza – July 25th, Ancaster, Ontario RUN4RETT – September 20th, Richmond Hill, Ontario

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