Rett Syndrome Awareness Videos
It is with a heavy heart, we share that Dr. Bengt Hagberg has passed away. Dr. Hagberg was a great friend to the Ontario Rett Syndrome Association and the Rett syndrome community. Dr. Hagberg played an instrumental role in educating the medical community about a mysterious female disease and the naming of Rett syndrome. Dr. […]
The Canadian Rett Syndrome Registry has been launched. All living Canadian residents diagnosed with RTT may enrol. The registry is available in French and English.
RETT SYNDROME SOCIETY OF BC We at the Rett Syndrome Society of BC (RSSBC) would like to thank you for allowing us to attend not only your “We ‘R’ family” conference but also the Friday evening research meeting. RSSBC was able to make connections with local researchers, physicians and even a couple of families. However […]
Silent Angel Golf Day – Sunday June 14th, 2015, Stratford, Ontario Neuropalooza – July 25th, Ancaster, Ontario RUN4RETT – September 20th, Richmond Hill, Ontario