Health Canada Accepts New Drug Submission for Trofinetide Acadia Pharmaceuticals is pleased to share that Health Canada has accepted their New Drug Submission (NDS) of trofinetide for the treatment of Rett Syndrome. Moreover, the treatment has been granted Priority Review to… Read More
The weekend of May 19 – 22 was an extra special one for O.R.S.A! Our amazing first-time partnership with an AAC camp proved to be wildly successful. FLASH (Family Literacy and AAC on the Shores of Huron) Camp… Read More
Sabrina Millson, President of Ontario Rett Syndrome Association quoted, “This is a momentous day for the Rett syndrome community. As a mom to a daughter living with Rett syndrome and the president of the Ontario Rett Syndrome Association… Read More
Health Canada Accepts a New Drug Submission
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Last Updated: 04/24/2024 by Steve
Health Canada Accepts New Drug Submission for Trofinetide Acadia Pharmaceuticals is pleased to share that Health Canada has accepted their New Drug Submission (NDS) of trofinetide for the treatment of Rett Syndrome. Moreover, the treatment has been granted Priority Review to… Read More
FLASH (AAC) Camp Update!
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Last Updated: 07/26/2023 by admin
The weekend of May 19 – 22 was an extra special one for O.R.S.A! Our amazing first-time partnership with an AAC camp proved to be wildly successful. FLASH (Family Literacy and AAC on the Shores of Huron) Camp… Read More
Taysha Rett Program Update
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Last Updated: 08/28/2023 by admin
Sabrina Millson, President of Ontario Rett Syndrome Association quoted, “This is a momentous day for the Rett syndrome community. As a mom to a daughter living with Rett syndrome and the president of the Ontario Rett Syndrome Association… Read More