With a very successful 2017 in the rearview mirror for the Ontario Rett Syndrome Association, we are looking forward to an amazing 2018! O.R.S.A. is making progress on our strategic plan. The plan includes 4 areas measured for results and outcomes by 2022. These areas are: increasing family networking and support, improving health system relations, creation of awareness strategies and to support organizational transition and stability.
In 2018 we will be offering free lifetime membership to O.R.S.A. with the goal of significantly improving the number of members. There are significant benefits to having increased membership and we plan to fully take advantage of those. These changes will allow us to grow and flourish into the scientific and educational powerhouse that we can be.
We will also be hosting another Rett syndrome conference in 2018! Our ‘Believe in Tomorrow’ Conference is being held April 13th to April 15th in Toronto. Our Conference Committee has all the speakers booked and we are finalizing the details of the presentation topics. Mark it in your calendars because registration will begin shortly.
We are also continuing to work diligently with doctors and researchers in Canada and internationally to create valuable connections with international pharmaceutical companies in an effort to bring a Rett syndrome clinical trials to Canada A component of this is showing our dedication to research. After releasing the largest Rett syndrome dedicated research grant in the history of O.R.S.A in 2017, the Hope Fund is currently receiving Letters of Intent for our 2018 Research Grant of $50,000.
None of this would be possible without the support of volunteer board of directors, who put in a lot of thankless hours to ensure that our association is successful and continues to grow and prosper. It is my privilege to lead this group of people who work together with passion towards a common goal, to make an impact on other people’s lives. Our accomplishments are made possible with the continued effort and support from our members, their families, friends and many others.
Thank you for this continued support.