P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

Health Canada Accepts a New Drug Submission 

Health Canada Accepts New Drug Submission for Trofinetide Acadia Pharmaceuticals is pleased to share that Health Canada has accepted their New Drug Submission (NDS) of trofinetide for the treatment of Rett Syndrome. Moreover, the treatment has been granted Priority Review to… Read More

FLASH (AAC) Camp Update!

The weekend of May 19 – 22 was an extra special one for O.R.S.A! Our amazing first-time partnership with an AAC camp proved to be wildly successful. FLASH (Family Literacy and AAC on the Shores of Huron) Camp… Read More

Taysha Rett Program Update

Sabrina Millson, President of Ontario Rett Syndrome Association quoted, “This is a momentous day for the Rett syndrome community. As a mom to a daughter living with Rett syndrome and the president of the Ontario Rett Syndrome Association… Read More