Acadia Pharmaceuticals Announces DAYBUE™ (trofinetide) is Now Available for the Treatment of Rett Syndrome — Commercial launch of DAYBUE offers Rett syndrome community the first and only approved therapy for Rett syndrome, a rare, neurodevelopmental disorder, which affects 6,000… Read More
FLASH (AAC) Camp Update!
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Last Updated: 07/26/2023 by admin
The weekend of May 19 – 22 was an extra special one for O.R.S.A! Our amazing first-time partnership with an AAC camp proved to be wildly successful. FLASH (Family Literacy and AAC on the Shores of Huron) Camp… Read More
Taysha Rett Program Update
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Last Updated: 08/28/2023 by admin
Sabrina Millson, President of Ontario Rett Syndrome Association quoted, “This is a momentous day for the Rett syndrome community. As a mom to a daughter living with Rett syndrome and the president of the Ontario Rett Syndrome Association… Read More
DayBue Announcement
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Last Updated: 07/26/2023 by admin
Acadia Pharmaceuticals Announces DAYBUE™ (trofinetide) is Now Available for the Treatment of Rett Syndrome — Commercial launch of DAYBUE offers Rett syndrome community the first and only approved therapy for Rett syndrome, a rare, neurodevelopmental disorder, which affects 6,000… Read More