Giving Tuesday is coming up on Tuesday, November 29th, 2016.

On giving Tuesday all donations to O.R.S.A. will be directed to The Hope Fund.  This fund exists solely for research and 100% of all these dollars will go to Rett syndrome research to find a cure and/or treatment for Rett syndrome.

Please share this link with friends who may be willing to make a donation to research:

http://givingtuesday.ca/partners/Ontario-rett-syndrome-association#.VIYOP3arTrd

Rise Against Rett Syndrome

Thank you to the Hollman family for supporting all those living with this rare disorder and making a difference by ‘Building Healthy Tomorrows’.  Fundraising does not need to be complicated, if your event educates one person about Rett syndrome then it should be considered a success!  If you are interested in creating or supporting a fundraising event, please do not hesitate to contact fundraising@rett.ca for more information.

      

Niagara Falls, Canada ~ The Colour Purple for Rett Syndrome Awareness Month on October 3rd.

October 25, 2015: The CN Tower will light up purple!

Pass it on…….

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It’s the 1st of October and Rett syndrome awareness month is officially underway. Annually, October is the month we give a big push to educate the public about Rett syndrome, to raise awareness and to share stories. This year our focus is WHY. Why would you give? We’ll be sharing stories throughout the month, stories from people like you telling us why they give.

The Ontario Rett Syndrome Association is joining forces with others around the world to tell the world about why we are all giving to find a cure and change the world for girls and women who live with Rett syndrome.

We share a common goal: finding treatments – and ultimately a cure – as soon as humanly possible, by speeding up the research that will unlock the girls. We’re asking everyone who gives to this life-changing cause – every family member, friend, sponsor, donor – to tell us what motivates you to give, whether it’s running a marathon, writing a cheque, organizing an event or taking part in a clinical trial.

This is what we’re asking YOU to do – post on social media using the hashtag ‪#‎WWYG‬, tell the world WHY you give. Let’s make this October one where people are inspired to learn more, give more and develop a lasting connection to our important cause.

You can freely share any of the images or links you see us using through the month. Want the cover photo or shareable graphic? Use them with our gratitude!! Please visit the website www.wwyg.org to see stories from dozens of people around the world. Want to see your story on the website? Send it to us along with a picture and we’ll add it for you.

When people work together the burden is shared and amazing things can happen. Here’s to a month full of awesome unity!

Please take the time to read the following two stories, thank you:

Terry- http://www.wwyg.org/portfolio/terry/

Darcy-http://www.wwyg.org/portfolio/darcy/

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Together We Are “Building Healthy Tomorrows”!

Another year, and another success! This year Madi’s Yard Sale raised a grand total of $11,239.35!!!

Like last year we held the yard sale over 2 days, July 17^th and 18^th. The weather wasn’t quite as cooperative as previous, as we spent much of the day on Friday trying to ward off the impending storm. It was cold and wet, and we were limited to indoor space – the garage, the neighbors garage, the trailers, and one little tent. Yet to our absolute amazement, we still couldn’t keep people away! Between the regular Friday yard sale shoppers and folks just wanting to support our cause, we were still crazy busy! The storm did eventually close us down early, but thankfully Saturday was a sunnier day and we made up for lost time.

We knew that not every person could find that “must-have second hand” item, so we decided to have a few raffle items this year, which was a success. We had Grama Anne – a local grandmother – helping us out, selling her one-of-a-kind sock puppets. She donated a portion of each sock puppet sold to the yard sale. Not to mention we had Madi’s paintings, which sold out in no time flat!

A lot of people approached us this year about helping Madi directly, and I was hesitant at first. I’m slowly learning the act of putting aside my pride and accepting help from people, but it’s not always easy. In the end we graciously accepted donations in the amount of $3,285.47 for Madi, which will go towards some of her new equipment costs. On top of that, $7,953.88, being all proceeds from the yard sale, and a good percentage of the donations, have been donated to O.R.S.A to fund further research for a cure.

Now, what’s in my mind as I write this is, could I have imagined a few years ago that in between working full-time, raising 2 children, doctors appointments, everyday life, etc, that we’d be spending half of every summer planning a yard sale? Nope. It was my husband’s idea, “just a small yard sale” he said. Hah! None of us could’ve imagined it would turn into 6 weeks of major planning, organizing, managing pick-ups and drop-offs from strangers, 3 storage units, 2 trailers, and 9 (now tired) people to pull it off. But it is completely worth it! It’s a time when our family comes together, some from out-of-province, and we spend 2 days in this whirlwind of physical exhaustion, laughter, and witnessing first hand the kindness and generosity of complete strangers. In the grand scheme of fundraising events this may be small-beans, but it’s more than the money raised – it’s the people we meet. It’s knowing that there are a few hundred more people walking around that know the definition of Rett Syndrome. And let’s be honest – raising $11,239.35 feels pretty darn good too!!

See you in 2016!

Sunday, August 9th, join The Great Ice Cream Eating Challenge at the Famous Enniskillen General Store serving the best of Kawartha Icecream in 44 delicious flavours.  Located at 7851 Old Scugog Road, Enniskillen, Ontario L0B 1J0.

Pre-Register in store or www.howtooranizethat.com

Ticket profits will be donated to the Ontario Rett Syndrome Association.

Thank you Ella of “How To Organize That”