P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

Welcome Bryan Higgins, O.R.S.A. Board


At our Annual General Meeting in August we elected a new member to our Board of Directors. Please join us in welcoming Bryan Higgins!

Bryan is the parent of a young girl with Rett syndrome and he has become quite involved, learning about communication, literacy and eye-gaze technology to help his daughter. Bryan brings with him several years of experience in internet technology, software development and social media. Bryan wants to be become involved to help others families and we welcome his energy, skills and enthusiasm!

mabel’s labels fundraising

mabel's labels


Step 1: As Campaign Captain (ahoy!), your first step is to visit our website, mabelslabels.com, click the “Support A Fundraiser” button located on the top of your screen, and then select your School/Organization or Camp from the drop-down list. 


 Step 2: Once your organization has been selected, you will be directed to a landing page that will say “YOUR ORGANIZATION NAME Welcomes You To Our Page > Click here to buy”

Step 3: Go ahead and press the pink “Click here to buy” button. Now, you have entered our website and are crediting your order to your campaign. How can you tell? Your Organization/Campaign Name will be listed on the top left of the screen.

Don’t see it? Then you aren’t in the right place. Call or email us to assist you with placing an order in support of your fundraiser.


2016 Research Grant Awarded

Contact Us

$50,000 in Research Grants Awarded
London, Ontario – April 29, 2016 – The Ontario Rett Syndrome Association (O.R.S.A.) Board of Directors has unanimously approved the funding of two $25,000 Research Grants from The Hope Fund. Read More

Medical Symposium

The Ontario Rett Syndrome Association is dedicated to continued medical and public education on Rett syndrome. On Friday, April 22nd, 2016 a medical symposium is being held at the Children’s Hospital of Eastern Ontario from 9:00 a.m. to 12:00 p.m. The leading physicians and researchers in the field of Rett syndrome will be speaking. Medical professionals may participate by attending the symposium or by linking in via Ontario Telemedicine Network (OTN). The general public is able to participate by using the OTN public webinar link. Families are encouraged to share this information with their child’s health care and educational teams. Information regarding the special links can be viewed on the symposium poster. Together we are building a healthier tomorrow for all those courageously living with Rett syndrome. For futher information please email 2016Conference@rett.ca. Watch the Medical Symposium Here.

Conference 2016 Q & A


Registration Questions and Answers


Do I have to pay a registration fee for both the communication/literacy workshop and the conference?
Read More