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Rare Connect Community

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About RareConnect

Living with a rare disease can be an isolating experience. RareConnect was created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders) to provide a safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources.

O.R.S.A. is now part of the RareConnect family to provide a connection about Rett Syndrome.