P.O. Box 50030 London, ON N6A 6H8 info@rett.ca (519) 474-6877

Outreach Family Support

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The Ontario Rett Syndrome Association realizes that a diagnosis of Rett syndrome can be devastating news for families. We have implemented a support program to aid our families through this transition.

New members receive an initial email, then phone call to offer help in answering questions that a seasoned parent/caregiver can answer. We also offer the opportunity to meet with families that can provide an experienced view with in your region.

Our Family Outreach Coordinator provides a knowledgeable and caring presence to share: up to date medical news; relevant home care information; brochures on upcoming O.R.S.A. conferences, educational workshops, fundraising and social events; and the importance of participating in the Canadian Rett Syndrome Registry.

Emails or calls concerning a question or request will be returned as soon as possible.