Ontario Rett Syndrome Association realizes that a diagnosis of Rett syndrome can be devastating news for families. Two years ago we implemented a support program to aid our families through this transition.
New members receive an initial email, then phone call to offer help in answering questions that a seasoned parent/caregiver can answer. We also offer the opportunity to met with a families that can provide an experienced view with in your region.
Our Family Outreach Coordinator and Outreach Committee provide a knowledgeable and caring presence at our clinics to share: up to date medical news; relevant homecare information; brochures on upcoming O.R.S.A. conferences, educational workshops, fundraising and social events; and the importance of participating in the Canadian Rett Syndrome Registry.
Emails or calls concerning a question or request will be returned as soon as possible.